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Managing Daily Medications at Home in Duchenne
Duchenne often means several daily medicines. How to organise doses, avoid missed ones, handle school and travel, track side effects, and keep it manageable.
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#safety
All articles and blog posts tagged #safety.
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Blog
Fat Embolism Syndrome: A Serious Risk After Fractures and Falls in Duchenne
Fat embolism syndrome is a rare but serious emergency that can follow a minor fall or fracture in Duchenne. Warning signs, why it happens, and acting fast.
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Adrenal Insufficiency and Steroid Sick-Day Rules in Duchenne
Long-term steroids in Duchenne can suppress the adrenal glands. What adrenal crisis is, the sick-day rules and stress dosing that prevent it, and when to act fast.
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Preparing for Surgery in Duchenne Muscular Dystrophy
Surgery preparation in DMD: pre-operative assessments, multidisciplinary planning, family logistics, and what to bring to the hospital.
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Managing Illness Days at Home in Duchenne Muscular Dystrophy
Managing sick days in DMD at home: fever, respiratory infections, missed corticosteroids, and when to call the clinic or head to the emergency room.
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Vaccinations in Duchenne Muscular Dystrophy
Vaccinations in DMD: influenza, pneumococcal, COVID-19, why respiratory protection matters more, and what to discuss with the care team.
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Dental Care for Duchenne Families
Dental care in DMD: routine cleaning, oral health, sedation and anesthesia precautions, and how to brief a dentist who has not treated DMD before.
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Emergency Preparedness for Duchenne Families
Emergency preparedness in DMD: the emergency card, steroid stress dosing, anesthesia and cardiac alerts, and how to brief a hospital that does not know your child.
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Anesthesia Safety in Duchenne Muscular Dystrophy
Anesthesia in DMD requires specific precautions: succinylcholine is contraindicated, volatile agents are avoided, and pre-op cardiac and respiratory assessment is essential.
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Gene Therapy Duchenne Muscular Dystrophy Update
Gene therapy for Duchenne muscular dystrophy, updated: micro-dystrophin, FDA approval, safety signals, and the unresolved questions ahead.