Article
Storytelling, Awareness, and the Race Against Time in Duchenne Muscular Dystrophy
A conversation with advocate Thomas Bartlett on why storytelling and public awareness, as much as science, drive funding, policy, and access in Duchenne.
Articles
Long-form on DMD
Reported pieces and analysis on Duchenne Muscular Dystrophy: disease, care, access, and the families living it. Sources linked inline.
Article
The Duchenne Lottery: Why Where a Child Lives May Now Matter More Than Ever
ELEVIDYS, the first Duchenne gene therapy, is approved in the US and Japan but rejected in Europe, leaving a child's access increasingly shaped by geography.
Article
The Same Disease, Different Countries: What Duchenne Parents in America and Georgia Reveal About Access, Hope, and Time
A reported comparison of how Duchenne families in the United States and Georgia experience access, advocacy, and the urgency of time.
Article
When Time Is Stealing Your Child: A Journalist's First Encounter With Duchenne
A journalist's first-person account of interviewing parents of children with Duchenne muscular dystrophy in Georgia, and what the conversation revealed.
Article
Duchenne, Drug Approval, and Public Policy: Why Georgian Families Are Demanding Action
How regulators, payers, and politics meet in the Duchenne treatment access dispute in Georgia, and what it says about rare disease policy.
Article
Children Waiting While Time Runs Out: The Human Cost of Duchenne in Georgia
Inside the Duchenne movement in Georgia: families, children, daily life, and what it costs to wait.
Article
Two Mothers, Two Realities
A reported piece on Duchenne Muscular Dystrophy, access to treatment, and the role information plays in deciding who receives care in time.