Article
Two Mothers, Two Realities
A reported piece on Duchenne Muscular Dystrophy, access to treatment, and the role information plays in deciding who receives care in time.
Tag
#misinformation
All articles and blog posts tagged #misinformation.
Articles
Blog
Blog
Health Misinformation Rare Disease Therapy Debates
Health misinformation rare disease debates can distort uncertainty, trust, access, and family decision-making around emerging therapies.
Blog
Duchenne Treatment Access Georgia: What Happened
Duchenne treatment access in Georgia: how evidence, cost, protests, and misinformation collided in a rare disease care debate.