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The Duchenne Lottery: Why Where a Child Lives May Now Matter More Than Ever
ELEVIDYS, the first Duchenne gene therapy, is approved in the US and Japan but rejected in Europe, leaving a child's access increasingly shaped by geography.
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ELEVIDYS, the first Duchenne gene therapy, is approved in the US and Japan but rejected in Europe, leaving a child's access increasingly shaped by geography.
Dmd treatment access by country varies through regulators, payers, health technology assessment, pricing, and local budgets.
Some families relocate or travel abroad for Duchenne treatment. The decision involves access, evidence, logistics, finances, and family.