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Holidays and Special Occasions With Duchenne
Birthdays, holidays, and celebrations matter for every child. How families with Duchenne adapt special occasions so a child can take part fully and enjoy them.
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#children
All articles and blog posts tagged #children.
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Blog
Learning, Attention, and the Neurodevelopmental Profile in Duchenne Muscular Dystrophy
Duchenne can affect the brain as well as muscles. The learning, attention, and behavioural differences linked to DMD, why they happen, and how assessment helps.
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Social Inclusion and Belonging at School in Duchenne
Belonging matters as much as access at school. How children with Duchenne can be included socially, how to handle exclusion or bullying, and what schools can do.
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Explaining Duchenne to Family, Friends, and Your Community
Explaining a Duchenne diagnosis to grandparents, friends, classmates, and the wider community: what to share, when, and how to handle reactions and advice.
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Siblings of Children With Duchenne Muscular Dystrophy
Siblings in DMD families: what they often experience, what helps, and how parents and care teams can support them through the long course of the disease.
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Friendships and Social Life for Children With Duchenne
Social life in DMD: peer relationships, summer camps, hobbies, and what families can do to keep a child connected as the disease progresses.
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Talking to a Child About a Progressive Disease
Age-appropriate, honest conversations about Duchenne with the child who has it: what helps, what to avoid, and when to ask for help.
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School Accommodations Duchenne Families Can Discuss
School accommodations for Duchenne can cover access, fatigue, learning, emergency planning, mobility, and inclusion in everyday school life.
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Early Signs of Duchenne Muscular Dystrophy
Early signs of Duchenne muscular dystrophy include delayed walking, frequent falls, calf enlargement, and when to ask a clinician about testing.